While planning for the care of a special needs child certainly tops the list of emotionally-charged topics, the peace of mind parents gain from a well-designed estate plan, more than compensates them for having to plan for the unthinkable.
The mere idea wrenches the heart of any parent: if untimely death or disability strikes, who will care for your children? Because no one is immortal, most of us recognize the need for an estate plan, preferably one that appoints a suitable guardian for our children, sees to their financial needs, and avoids probate.
In the best of circumstances, it’s a task requiring clear thinking and good legal advice. But when a child has special needs, the challenge intensifies.
Before we explore estate planning strategies for parents of special needs children, let’s look at why all parents need an estate plan.
“A ward of the court” may sound like something out of the nineteenth century. But that’s precisely what becomes of children whose legally disabled or deceased parents have failed to plan for their care. Unless you’ve created an estate plan that spells out who should assume responsibility for your child, the courts will step in. And that’s true whether you’ve left behind an estate worth millions or nothing at all.
When children take center stage in probate court, it’s because the court wants to ensure that a responsible person is supervising their physical needs and financial affairs. The court will appoint a guardian to assume responsibility for your child’s personal care. To oversee your child’s financial affairs, the court will appoint a financial guardian. Often, the financial guardian is not one person, but an entity, such as a bank or a professional money management institution.
Because the court is involved in supervising their activities, guardians frequently hire attorneys to help them navigate through the legal system. The fees for these attorneys—as well as the fees charged by the guardian and the probate court itself—all come out of the estate you’ve left behind for your child’s benefit. These expenses leave less money to provide for your child’s care, education, and other requirements.
The most critical reason why parents of a special child need a special estate plan: it is the only way to ensure that you can provide for your child without jeopardizing the child’s eligibility for government and private benefit programs.
The Special Needs Trust allows a parent, grandparent or guardian to provide funds for a disabled child without disrupting the child’s eligibility for government aid. Setting one up is a fairly simple process.
Working with your estate planning attorney, you appoint trustees for your child’s trust. The trustees will manage the assets you transfer to the trust for your child’s benefit. In the event of your disability or death, the trustees will also supervise your child’s finances.
During your lifetime, you can serve as trustee and remain in complete control over your child’s finances. Should you die, however, your successor trustees will step in and take care of your child’s finances on your behalf.
Unlike the guardian, a probate court might appoint, your successor trustee is someone you know and trust. Relatives or close family friends can be appointed to supervise your child’s finances. To work with financial institutions and manage the estate, you may also want a trusted financial advisors to serve as trustee.
As part of setting up your child’s Special Needs Trust, you will provide detailed written instructions to direct your trustees’ activities. By law, trustees must follow these instructions. So you can rest assured your child’s education, housing, and other needs are being taken care of.
Best of all, the Special Needs Trust will preserve your child’s eligibility for federal, state and charitable benefit programs. This is accomplished by providing that the funds can only be withdrawn from the Special Needs Trust for purposes other than those covered under the governmental and private benefit programs.
As difficult a subject as it might be, all parents owe it to their children to ensure that they’re well cared for, come what may. Parents of special needs children face an even greater imperative to do this essential planning.